Umntwana wakho wafumanisa ukuba unesifo seswekile. Yintoni elandelayo?

Imfundo yezeMpilo

Ukufumanisa ukuba umntwana wakho une-1 yeswekile ngumtshintshi womdlalo. Kufana nokutshintshelwa kwilizwe ongaliqhelanga, apho kufuneka ufunde ulwimi olutsha kunye nemihla ngemihla. Ngelixa ezinye izinto zinokubonakala ziqhelekile, njengokutya kunye nokuzilolonga, ezinye izinto zintsha ngokupheleleyo, njengokuthatha i-insulin kunye nokuvavanya amanqanaba eglucose egazini. Ukuhamba ngeswekile ebuntwaneni kunye nokwenza yonke into isebenze ngokufanelekileyo kufuna indlela entsha yokucinga nokwenza.

Inokoyikisa kwaye yoyike — kuwe kwaye yomntwana wakho.

Uhlobo lweswekile 1 luchaphazela njani umzimba womntwana wakho?

Uhlobo lwe-1 yeswekile (i-T1D), ngamanye amaxesha ebizwa ngokuba sisifo seswekile solutsha, lwenzeka xa umzimba womntwana wakho uyeka ukuvelisa i-insulin, ihomoni enceda ukuguqula iswekile (iswekile) ekutyeni ibe ngamandla. Ngaphandle kwayo, umzimba awunakulungelelanisa ngokwendalo amanqanaba eswekile yegazi. Ke, umntwana wakho kufuneka afumane i-insulin evela ngaphandle-afakwe ngenaliti yesirinji okanye afakwe emzimbeni ngesixhobo esibizwa ngokuba yimpompo ye-insulin. Ngaphandle koko, amanqanaba eswekile yegazi anokuphakama aphakame kakhulu, anokubangela inani leengxaki zempilo zexesha elide ukusuka ekungaboniyo ukuya kwilungu nakwilungu lomzimba ukuba alunyangwa.

Ukuqinisekisa ukuba amanqanaba eswekile yegazi ahlala kuluhlu olusempilweni xa umntwana wakho esitya, kufuneka uthathe ithontsi legazi kwintonga yomnwe kwaye usebenzise isixhobo esibizwa ngokuba yi-glucometer ukusivavanya. Isiphumo ngasinye sikhokela ukuba zingaphi iigram zekhabohayidrethi umntwana wakho anokuzitya, idosi ye-insulin, okanye umthambo ongakanani umntwana wakho awufunayo. Iswekile ephezulu yegazi ayisiyiyo kuphela imicimbi. Iswekile esezantsi yegazi inokubangela iingxaki xa umntwana wakho ene-insulin eninzi kwaye engenako ukutya okwaneleyo emzimbeni. Kuninzi ukuphatha.

Ungamnceda njani umntwana onesifo seswekile?

Sibuze abazali abaliqela kunye neengcali zeswekile ukuba bacebisa ngantoni abo bajongana nokuchongwa kweT1D yomntwana. Nazi iingcebiso zabo.

1. Funda iziseko.

Ulawulo lweswekile lubandakanya ukulungelelanisa ukutya okutyayo, ukuzilolonga, amayeza, kunye nokuvavanywa emva koko uphendule kumanqanaba eswekile yegazi. Akukho lonyango lwesifo seswekile ebuntwaneni, kodwa lukhona unyango olusebenzayo. Ukuqonda indlela into nganye esebenza ngayo emzimbeni kubalulekile ekulawuleni ukhathalelo lomntwana wakho.

Imfundo yosapho lonke ibalulekile, utshilo uJennifer McCrudden, i-APRN, i-FNP-C, i-CDE, ugqirha ongumongikazi wosapho oqinisekisiweyo kunye nomhlohli onesifo seswekile. Ukuzifundisa ngokufunda amanqaku eswekile kwiiwebhusayithi ezivela kwi-JDRP okanye kwi-ADA, ufuna amaqela enkxaso, ukuya kwiinkomfa, kuluncedo kakhulu.

Umbutho weAmerican Diabetes Association (ADA) ubonelela uhlobo lwe-1 yesikhokelo seswekile njengokukhuphela simahla ukunceda ukuyicacisa yonke. Thetha neqela lomntwana wakho lokhathalelo lwempilo, kwaye ubuze yonke imibuzo onokucinga ngayo-zilapho ukukunceda uhlengahlengiso kwisifo somntwana wakho.

2. Thatha izinto ngenye imini.

Ngelixa unokuyiqonda indlela isifo seswekile esisebenza ngayo kwinqanaba lobukrelekrele, inyani kukuba izinto ngamanye amaxesha zinokwenzeka ukuba uzive ungalawuleki. Eli inokuba lixesha loxinzelelo kunye neloyikisayo emntwaneni kodwa nakumzali, utshilo uMcCrudden. Iinaliti zinokuba buhlungu okanye zibangele uxinzelelo ekuqaleni. Okanye, mhlawumbi umntwana wakho unentloni malunga nokujongana nemeko phambi kwabanye abantwana okanye uziva ngathi ngumthwalo.

Ulawulo lwesifo seswekile ngumsebenzi olinganiselayo, utshilo uLisa Goldsmith, waseNatick, eMassachusetts, ontombi yakhe yafunyaniswa ineminyaka esi-7. Ungenza yonke into ngokulungileyo kwaye usafumana iswekile ephezulu yegazi. Ayisiyo sayensi ngqo kwaye awusoze ube nokugqibelela. Kodwa uya kufumanisa isiqhelo kwaye uhlakulele isiqhelo esitsha. Okukhona nihlengahlengisa imeko, kokukhona kuya kubakho iintsuku ezintle.

3. Buza iteknoloji.

Ulawulo lwesifo seswekile kubantwana ludinga izixhobo ezininzi: iisirinji, i-insulin, imitha yovavanyo lweglucose, imicu yovavanyo, ii-swabs zotywala kunye nezinye izinto. Uninzi lwabantu lucinga ukuba inaliti kuphela kwendlela yokufumana i-insulin kunye nokuvavanywa kwemichilo kuphela kwendlela yokulinganisa iswekile, kodwa akukho bungakanani-bukhulu-bonke-isicwangciso solawulo seswekile. Ngezitofu, abantwana bahlala befuna ezimbini okanye nangaphezulu ngemini. Abanye bakhetha ukusebenzisa impompo ye-insulin, isixhobo esinxitywayo esinikezela nge-insulin imini yonke kwaye sinokuhambisa i-insulin ngaphambi kokutya ngokucofa iqhosha, endaweni yokutofa ngenaliti.

Zininzi izinto eziqhubela phambili kwitekhnoloji yeswekile, utshilo uMcCrudden. Ndingacebisa abaguli ukuba badibane noMhlohli weSwekile onolwazi ngazo zonke izinto ezikhoyo apho.

Impompo ye-insulin inokwenza kube lula ukugcina amanqanaba eglucose egazini kumanqanaba acetyiswayo (nangona ifuna ukujongwa kufutshane). Kukwakho nesixhobo esinxitywayo sokujonga iswekile yegazi eyaziwa njengeglucose monitor (CGM) eqhubekayo enokuthi ithumele amanqanaba eglucose kwizixhobo okanye kwi-smartphone. Ii-CGMs zinokubonisa ngcono imeko kumanqanaba eswekile kunokuba kunamathela kwiminwe kunye neemitha, kodwa kufuna ukunxiba inzwa emzimbeni kangangexesha elithile.

Ndikucebisa kakhulu ukuba ufumane umntwana wakho i-CGM, ukuba kunokwenzeka kuwe kwaye ukuba umntwana wakho unokufumana oku, ucebisa uSusan Cotman, waseWayland, eMassachusetts, ontombi yakhe yafunyaniswa kwiminyaka emibini eyadlulayo. Izise uxolo olukhulu lwengqondo, kodwa kunye nokuqonda okungcono kwindlela yeglucose yegazi lentombi yam ephendula ukutya ekutyayo nokuzilolonga. … Ukubona amanqanaba eglucose ngokweenkcukacha ezipheleleyo kunye ne-CGM, xa kuthelekiswa nokujongwa komnwe ngamathuba athile, yayindivula amehlo ngokwenene, kwaye indifundise ukuba le nto bendicinga ukuba ndiyayiqonda malunga nesondlo nendlela echaphazela ngayo umzimba womntu ayisiyonyani, ngakumbi emntwini onomzimba ongenakho ukwenza i-insulin.

Kodwa ukuba netekhnoloji eluncedo ayithathi indawo yokucinga ngokhetho kwindlela otya ngayo, umthambo, kunye nedosi ye-insulin. Eyona mbono iphosakeleyo kukuba ezi zixhobo ziya kwenza yonke into kwisigulana, utshilo uMcCrudden. Isigulana kusafuneka sibe nobuchule ekufundeni ukusombulula ingxaki. Ngelixa isixhobo sixhasa, isigulana kufuneka senze ukhetho kwaye sibandakanyeke ngokuzikhathalela, utshilo.

4. Fumana inkxaso.

Ukuthetha nabanye abayifumanayo kunokukunika ukuzithemba kunye nokuqonda malunga nosuku lwakho olutsha. Ingaziva ingaphaya kwamandla, kodwa awuwedwa. I-18,400 yabantwana nolutsha kufunyaniswa ukuba banayo uhlobo lwe-1 yeswekile qho ngonyaka. Fumana umntu obomi bokwenyani bokukuxhasa, ungayenzi wedwa, utshilo uMoira McCarthy, umbhali Isikhokelo saBonke abazali esiBonisa abantwana abanesifo seswekile . Intombi yakhe uLauren yafunyaniswa kwiminyaka engama-22 eyadlulayo eneminyaka eyi-6.

Funa omnye umzali okanye umntu omdala one type 1, uyacebisa. Kusoloko kukho iindlela zokubafumana. Ungabiza isahluko sendawo seJuvenile Diabetes Research Foundation (JDRF) okanye i-ADA, okanye ubuze ugqirha wakho we-endocrinologist ukuba kukho amaqela oluntu apho ungafumana abanye onokuthetha nabo. UMcCarthy uyavuma ukuba maninzi amaqela enkxaso kwi-Intanethi kodwa ulumkisa ngokuchasene nokuzisebenzisa kuphela. Kwi-Intanethi, kunokubakho uloyiko oluninzi kwaye akusoloko kusekelwe kwinyani, utshilo. Ukuqhagamshela nabantu abaye bafumana uhlobo 1 lokuchongwa kunokunceda usapho lwakho luhlengahlengise.

5. Gcina amaphupha ephila.

Sukuvumela isifo sikashukela sitshintshe oko ubusoloko ucinga ukuba umntwana wakho angakufezekisa. Emva kokuba intombi yakhe ifunyenwe ineminyaka esixhenxe, uGoldsmith uve iingcebiso zesilumko: Onke amathemba namaphupha endibe nawo ngoMadelyn izolo isenokuba ngawo onke amathemba namaphupha endinawo ngaye namhlanje, utshilo. Ndizama nzima ngenene ukungavumeli uMadelyn azive ngathi ulixhoba lesi sifo. Ukuba kukho umdlalo awuthandayo, angadlala. Wayefuna ukuya kwinkampu yobusuku bonke, kwaye safumanisa indlela yokumthuma kunye naye ukuze akhuseleke. Kuya kuthatha ngaphezulu kokucwangciswa kwangaphambili kunye nokulawula emva kwezigcawu, kodwa ndathembisa ukuba ndizakufumana indlela yokumnceda enze yonke into ayifunayo.