Uyiphatha njani indawo yokuhlala ubusuku kubantwana abanesifo seswekile

Imfundo yezeMpilo

Xa intombi yakhe eneminyaka eli-9 ubudala uAdisonison wabuyela ekhaya evela kwitheko lakhe lokuqala lokulala, wayenemincili, uyachaza uSarah Paul, waseGermantown, eWisconsin. Ekugqibeleni wafika ekunye nabahlobo bakhe endlwini yomnye umntu. Wayeyazi ukuba linyathelo elikhulu.

U-Addison uhlala nohlobo lwe-1 yeswekile (T1D) ukusukela kwiminyaka emibini enesiqingatha. Uye wanxiba itekhnoloji esindisa ubomi ukumnika i-insulin kwaye abeke esweni ukuhla kwamanqanaba eswekile yegazi ukusukela kwiminyaka yobudala emi-3. Kodwa wayengazange aye kwi-sleepover.

Abantwana abanesifo seswekile sokuqala abangavelisi i-insulin, ihomoni eguqula ukutya kube ngamandla. Ngaphandle kwe-insulin-okanye i-insulin eyaneleyo-ukutya kuguqulwa kube yi-glucose (okanye iswekile), kodwa umzimba awunakukusebenzisa. Iswekile engaphezulu inokubangela i-ketoacidosis yeswekile. Iglucose esezantsi yegazi inokubangela ukudideka, ukubila, ukugungqa, ukuphulukana nokuqonda, kunye nokubanjwa. Zombini iziphelo zembonakalo zinokuba yingozi, nokuba zibulale, kwaye zidinga unyango kwangoko-ngamanye amaxesha nditsho nohambo lokuya esibhedlele ukuze kulawulwe.

Ngeqela lokulala elikhuselekileyo, umntwana kwaye abazali ababamba iindwendwe kufuneka bayazi indlela yokujonga amanqanaba eswekile yegazi kunye nendlela yokuphatha ephezulu okanye ephantsi ngokufanelekileyo. Kungoyikisa abazali babantwana abanesifo seswekile ebuntwaneni. Kodwa, ihlala ikhona indlela yokwenza izinto zisebenze ukuze abantwana abanesifo seswekile abancinci banokuthatha inxaxheba kwiindawo zokulala, iinkampu, okanye eminye imisebenzi ebandakanya ukuhlala kwenye indawo ubusuku ngokuzimeleyo.

Ezinxulumene: Umntwana wakho wafumanisa ukuba unesifo seswekile. Yintoni elandelayo?

Uyilungiselela njani indlela yokulala neswekile yolutsha

Njengazo zonke ezinye izinto zokuphila nesifo seswekile ebuntwaneni, ukulungiselela ukuhlala ubusuku kubalulekile. Yonke usapho yahlukile, kodwa ukuba ubunokuthi ewe kwi-sleepover ngaphandle kweswekile, ke usebenza ukuyenza ewe nesifo seswekile, utshilo uDiane Herbert, utitshala wesifo seswekile oqinisekisiweyo kunye nenqununu Imicimbi ye-E1c , inkampani yokubonisana neswekile kunye nenkxaso yabameli esekwe ePhiladelphia.

Yeyiphi indlela ebalaseleyo yokulungiselela? Iingcali zesifo seswekile-kunye nabazali abakhe badlula kuyo-babelana ngala manyathelo.

Bamba iqela lokulala, okanye uqale ngokulala phantsi.

Abanye abazali bayalala phantsi, uHerbert ucebisa njalo. Kulapho umntwana ahlala endlwini yomhlobo emva kwexesha, atshintshe kwiipijama, kodwa agoduke ngaphambi kokuba alale. Ukwenza i-sleepover ikakhulu kuxhomekeke kubudala bomntwana, utshilo.

Ngaphambi kokuhlala kwakhe okokuqala endlwini yomhlobo wakhe, intombi kaSarah uAdisonison wayevumelekile ukuba nabahlobo balale endlwini yakhe — kodwa wayengakwazi ukuhlala ezindlwini zabo de abe uyakwazi ukuvavanya amanqanaba eswekile yegazi kunye nendlela yokunyanga ephezulu okanye ephantsi. amanqanaba ngokufanelekileyo.

Yenza uvavanyo lokuqhuba ukuzimela ngaphambi kokuhlala ubusuku bonke.

Ukuba umntwana wakho ulawula isifo sakhe seswekile, ngokuzivavanya amanqanaba eglucose egazini, esenza izigqibo zokuthatha i-insulin ngokusekwe kwinto etyiwayo, kunye / okanye ukutshintsha izinto zempompo ye-insulin ngokuzimeleyo, lixesha lokuyivavanya ekhaya ebusuku.

Khetha usuku lomsitho, ubuye umva ngenyanga okanye njalo, kwaye wonke umntu alungele kwaye akhululeke, utshilo uHerbert. Yakha izakhono ekuhambeni kwexesha. Ixesha lokuyifunda ayiloxesha lokulala.

Thetha nababuki zindwendwe malunga noxanduva lwe-T1D.

Umama ka-Addison wayefuna ukuziva ekhululekile malunga nokuqonda kwabazali ngoxanduva olubandakanyekayo kwisifo seswekile solutsha. Umama womhlobo wakhe waqhagamshelana nam wabuza ukuba u-Addison angaza na kwaye saxoxa apho, utshilo uSarah. Wayengazi nto ngesifo seswekile, ndaza ndaya endlwini yakhe ndambonisa izixhobo ezisetyenziswa nguAdisonison. Umama uye wehla ngokukhawuleza ngendlela abasebenza ngayo, waba nejusi eyongezelelweyo ngesandla, kwaye wathi uza kuyigcina ifowuni yakhe ubusuku bonke xa kunokwenzeka ndidibane naye.

Ubuncinane, abazali babantwana abanesifo seswekile kufuneka babhale isicwangciso esingxamisekileyo sabazali abaza kubamba, utshilo u-Anastasia Albanese-O'Neil, utitshala onesifo seswekile oqinisekisiweyo kunye nonjingalwazi oncedisayo eklinikhi kunye nomphathi wezemfundo yeswekile kunye nokusebenza kweklinikhi. IYunivesithi yaseFlorida.

Bhala uluhlu lwezinto onokuzenza kwiimeko ezithile.

Kufuneka ibandakanye indlela yokujonga nokunyanga iswekile esezantsi yegazi, iimpawu zeetoni [ezibonakala kumchamo okanye egazini xa amanqanaba ephezulu] kunye namagama kunye neenombolo zefowuni zokuba ngubani onokunxibelelana naye, utshilo u-Albanese-O'Neil.

Pakisha yonke into oza kuyidinga umntwana wakho ukuze azilawule ngempumelelo imeko yakhe.

Oku kunokubandakanya:

• Iisirinji kunye ne-insulin ukuba umntwana wakho uyakudubula
• Impompo ye-insulin kunye notshintsho lwezixhobo ukuba impompo inokufuna ukutshintsha ngelixa kulindwe
• Imitha yeswekile eneebhetri ezingaphezulu
• Imigca yovavanyo
• Iilancets kunye ne-swabs yotywala
• Umthombo weswekile esebenza ngokukhawuleza ezinje ngeebhokisi zejusi ezimbalwa okanye isikhongozeli seeglucose tab
• Ukubeka esweni okuqhubekayo kweglucose ukuba umntwana wakho usebenzisa enye
• Itshaja yempompo ye-insulin kunye / okanye ukubeka esweni okuqhubekayo kweswekile, ukuba kukho imfuneko

Fundisa umntwana wakho intetho.

U-Addison usebenzisa i-glucose esweni (CGM) eqhubekayo ebonisa ukutshintsha kweswekile, kunye nempompo ye-insulin ehambisa kancinci i-insulin imini yonke kwaye ivumela umsebenzisi ukuba athathe i-insulin eyongezelelweyo ngaphambi kokutya ngaphandle kwenaliti ngalo lonke ixesha.

Kumntwana ongasebenzisi i-CGM okanye otofa i-insulin endaweni yokusebenzisa impompo ye-insulin, umntwana kufuneka avavanye amanqanaba eglucose egazini rhoqo kwaye enze ngokufanelekileyo, okanye asebenze nomzali osamkelayo ukwenza njalo.

IAlbania-O'Neil icebisa ukuba ulungiselele umntwana wakho ukuba athethe nabahlobo kunye nabazali babo ngemeko yabo. Banike ulwimi ukuba bathethe ngesifo seswekile ukuze bazive bekhululekile kwaye bezithembile, utshilo.

Khuthaza umntwana wakho ukuba ahlale eqhagamshelana.

Ukuba umntwana uyakwazi, kwimpompo, banokuvavanya baphinde balungise indawo ephezulu, okanye batsalele umnxeba ekhaya balandele imiyalelo yomzali yokunyanga inani eliphezulu le-insulin, utshilo uGary Scheiner, utitshala onesifo seswekile oqinisekisiweyo kunye nomnini kwaye Umlawuli weklinikhi Iinkonzo eziHlanganisiweyo zeSwekile Wynnewood, ePennsylvania.

Nangona abantwana bebadala ngokwaneleyo ukuba bangaphatha isifo seswekile ngokwabo, akukaze kubuhlungu ukuphinda ujonge ithamo nomama notata, okanye uqinisekise ukuba benza into elungileyo. Bazise ukuba kulungile ukuthumela umyalezo ngefowuni okanye ukufowunela ukuqinisekiswa kunye noncedo-nokuba liphi ixesha lobusuku.

Funda ukuyeka, kancinci.

Ngobo busuku bokuqala, ethembele kwitekhnoloji yeswekile ayinxibileyo kule minyaka mithandathu idlulileyo, uSarah wabukela amanqanaba eglucose egazi lika-Addison ngokusebenzisa i-app ye-smartphone. Kuba uSarah usetyenziselwa ukubeka esweni i-Addison ekhaya-ubusuku bonke ngokuvuka rhoqo ukujonga kabini amanqanaba eglucose (i-CGM kufuneka ilinganiswe ngeminwe) -kwakunzima ukuyijonga ukude. Khange ndibufumane ubuthongo esiphelweni sam, kodwa uzive ezizimele ngakumbi, utshilo uSarah. Sizama ukumvumela ukuba abe ngumntwana kwaye abe nesiqhelo kangangoko anakho.

Lindela ezinye izitenxo.

Ngenxa yokutya okwahlukeneyo kunye nemisebenzi yokulala ubusuku bonke, uScheiner uthi akufuneki wothuke zezinye zeenguqulelo. Ungalindeli ukuba iswekile yegazi yesiqhelo ngezi ntlobo zeziganeko, njengoko zinokuvuka okanye ziwe ukuba umntwana uleqa abanye ejikeleza indlu ezinzulwini zobusuku okanye esitya iDoritos kwingxowa enkulu, utshilo. Akunyanzelekanga ukuba ube nolawulo lweswekile entle yegazi kwezi meko. Sukuba nexhala ukuba umntwana wakho [unofundo lweswekile egazini] kwii-200s kwiimeko ezinje ngezi.

Isifo seswekile akufuneki siphange umntwana wakho amava ahambelana nobudala. I-Sleepovers sisithethe esikhethekileyo sobuntwana kwaye abantwana abanesifo seswekile kufuneka bathathe inxaxheba kuzo nanini na kunokwenzeka, utshilo u-Albanese-O'Neil. Ngelixa izakufuna ukucwangciswa okungaphezulu kunye nesidingo sokufundisa usapho olundwendwe, umvuzo wenkumbulo zobomi bakho uwufanele umzamo.